Inspiring * Transformational * Courageous * Personable

Dream On!

My dad came to the United States from Colombia as a professional wrestler in the 1960’s.  He barely spoke any English and was armed with only an elementary school education.  My mother came from Nicaragua and even though she had accomplished a post graduate education from...
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The Power of YOU

I became a citizen of the United States in the seventh grade.  As a Canadian 13 year old girl with Latino parents, it was a fantastic experience to learn about what an honor being an “American” truly is.  I wasn’t born into it.  It was a choice.  It was a...
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Dreams DO Come True!

The Olympics Games are an amazing example of watching dreams become reality.  To see all the hard work and dedication invested by the athletes finally pay off is inspiring.  To know when they cross that finish line or score that final point embodies an emotional culmination of...
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COSMO!

Holy smokes… I’m in COSMO!  Thanks to Mel Evans and the great people at Cosmopolitan Magazine Australia bureau for including me in their series “How Does it Really Feel When the Unimaginable Happens?”.   Ok so maybe it’s not as the cover model but I...
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More than Meets the Eye

Have you met my awesome little guy Dorian?  He’s kinda a big deal at our house.  He’s so special that he requires round the clock home health nursing care.  He’s on home based hospice care and is always making us laugh at ourselves, at his goofy faces and his...
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You are that ONE person

You’re just one person. In your mind you might hear “I’m not powerful.  I’m don’t have all the connections.  I can’t make a difference.” Don’t listen to that inner voice because it’s rarely true. Case in point is this...
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How Did That Make You Feel?

Last week I received a random email via my website.  As many random emails I receive, it started simply with a “I don’t know if you remember me but…” This email was from someone who thought I wouldn’t remember them.  This email was from someone that...
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Reason to Celebrate… To See, To Feel, To Be!

I have TWO big and adorable reasons to celebrate International Rare Disease Day… Dorian and Wynn Johnson my awesome baby boys.  These little guys are my heroes.  They have brought me to the world of rare diseases.  They have connected our family with other i-cell warrior...
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Rare Gems… One in a Million

  I don’t mean to brag, but my two youngest twin boys are one in a million.  No really, I’m not delusional, I’m not a mother blinded by maternal love — my babies really were born one in a million.  It’s only one in a million twins that are born...
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I Have PTSD

Post Traumatic Stress Disorder has many faces.  When I was first diagnosed with PTSD, I had recently survived American Airlines Flight #965 that plane crash in the Andes Mountains that killed my parents along with 160 total souls on board.  I remember how confused I was at my...
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Wrong Number!

Very few of my clients send me faxes anymore. I guess it’s “so 2002”? I’m not always current with all the latest technologies anymore.   Most of my clients scan the document and then email it to me. But this morning I received an alert for a new fax and my...
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Ne-Yo meets his biggest fan!

Click on this link here — Dorian’s Make-A-Wish Ne-Yo If you take a look at this video you will see my son’s Make-a-Wish dream come true!  Dorian was introduced to Ne-Yo’s music when his nurse Stephanie would play his music videos for him at night.  His...
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