One in a million. That is exactly what Mercedes and her family discovered that their youngest set of twin boys were when they were born. Her sons Dorian and Wynn were born with Mucolipidosis II (also referred to as i-cell disease). Only 1-2 infants in every one million births are diagnosed with the progressive terminal illness. Mercedes and her husband have given much time and resources in coordinating fundraisers and raising awareness The National MPS Society, the key organization that provides assistance and research grants for families living with terminally ill children.
To learn more about the National MPS Society click here.
Take a moment to learn more about Mercedes’s family journey and the plight of i-cell families worldwide, by watching the video below.