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Have you met my awesome little guy Dorian?  He’s kinda a big deal at our house.  He’s so special that he requires round the clock home health nursing care.  He’s on home based hospice care and is always making us laugh at ourselves, at his goofy faces and his... Read More →

You’re just one person. In your mind you might hear “I’m not powerful.  I’m don’t have all the connections.  I can’t make a difference.” Don’t listen to that inner voice because it’s rarely true. Case in point is this... Read More →

Last week I received a random email via my website.  As many random emails I receive, it started simply with a “I don’t know if you remember me but…” This email was from someone who thought I wouldn’t remember them.  This email was from someone that... Read More →

I have TWO big and adorable reasons to celebrate International Rare Disease Day… Dorian and Wynn Johnson my awesome baby boys.  These little guys are my heroes.  They have brought me to the world of rare diseases.  They have connected our family with other i-cell warrior... Read More →

  I don’t mean to brag, but my two youngest twin boys are one in a million.  No really, I’m not delusional, I’m not a mother blinded by maternal love — my babies really were born one in a million.  It’s only one in a million twins that are born... Read More →

A vivacious and intelligent attorney friend of mine posted this today as her Facebook status and it immediately made me raise my hands to the sky and shout AMEN!  Here’s what Ms. Harris posted: “IF you’re the smartest person in the room…you’re in the... Read More →

If I had a shiny nickel every time someone has asked me “What are you?”  I would be able to buy a shiny new car.  Through the years the answer has been the same, just in different “what they call us these days” dialect.  When I was in elementary, I’d... Read More →

“There is a difference between being convinced and being stubborn. I’m not certain what the difference is, but I do know that if you butt your head against a stone wall long enough, at some point you realize the wall is stone and that your head is flesh and... Read More →

Wake Up and Shake Up- It’s About You! Intrapreneurs are the “dreamers who do.” A mind is meant to imagine and then act. It is a terrible thing to split apart the dreamer and the doer. -Gifford Pinchot Bold. Hungry. Passionate. Trail-blazing. Fearlessl... Read More →

Wake Up and Shake Up- It’s About You! Welcome every morning with a smile. Look on the new day as another special gift from your Creator, another golden opportunity to complete what you were unable to finish yesterday. -Og Mandino Life is full of second chances. I’ve recently... Read More →

Wake Up and Shake Up- It’s About You! An affirmation is a strong, positive statement that something is already so. -Shakti Gawain I know this guy who has a habit of announcing to his inner circle of friends exactly what he’s going to accomplish. Then, with laser precision, he... Read More →

Wake Up and Shake Up- It’s About You! Acceptance of others – their looks, their behaviors, their beliefs – brings you an inner peace and tranquility, instead of anger and resentment. -Source Unknown My favorite questions that people ask me: “Are you Mexican?”“Are you black?”And... Read More →