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Have you met my awesome little guy Dorian?  He’s kinda a big deal at our house.  He’s so special that he requires round the clock home health nursing care.  He’s on home based hospice care and is always making us laugh at ourselves, at his goofy faces and his... Read More →

You’re just one person. In your mind you might hear “I’m not powerful.  I’m don’t have all the connections.  I can’t make a difference.” Don’t listen to that inner voice because it’s rarely true. Case in point is this... Read More →

Last week I received a random email via my website.  As many random emails I receive, it started simply with a “I don’t know if you remember me but…” This email was from someone who thought I wouldn’t remember them.  This email was from someone that... Read More →

I have TWO big and adorable reasons to celebrate International Rare Disease Day… Dorian and Wynn Johnson my awesome baby boys.  These little guys are my heroes.  They have brought me to the world of rare diseases.  They have connected our family with other i-cell warrior... Read More →

  I don’t mean to brag, but my two youngest twin boys are one in a million.  No really, I’m not delusional, I’m not a mother blinded by maternal love — my babies really were born one in a million.  It’s only one in a million twins that are born... Read More →

Post Traumatic Stress Disorder has many faces.  When I was first diagnosed with PTSD, I had recently survived American Airlines Flight #965 that plane crash in the Andes Mountains that killed my parents along with 160 total souls on board.  I remember how confused I was at my... Read More →

Very few of my clients send me faxes anymore. I guess it’s “so 2002”? I’m not always current with all the latest technologies anymore.   Most of my clients scan the document and then email it to me. But this morning I received an alert for a new fax and my... Read More →

Click on this link here — Dorian’s Make-A-Wish Ne-Yo If you take a look at this video you will see my son’s Make-a-Wish dream come true!  Dorian was introduced to Ne-Yo’s music when his nurse Stephanie would play his music videos for him at night.  His... Read More →

A vivacious and intelligent attorney friend of mine posted this today as her Facebook status and it immediately made me raise my hands to the sky and shout AMEN!  Here’s what Ms. Harris posted: “IF you’re the smartest person in the room…you’re in the... Read More →

If I had a shiny nickel every time someone has asked me “What are you?”  I would be able to buy a shiny new car.  Through the years the answer has been the same, just in different “what they call us these days” dialect.  When I was in elementary, I’d... Read More →

Gulp.   This is a difficult question to ask yourself.  Objectively speaking, are you a top performer (as in the top 10-20%) on  your team?  Certainly if you are reading this I’m sure it’s safe to say you are not a C-Player… the bottom 20%, the ones that... Read More →

My parents never told me I was a princess.  My mom never let me complain if people at school made fun of my brown skin or my unruly curly hair (I was the only brown girl in my entire elementary school).  In fact, she MANY times told me “everybody has problems, no body... Read More →